NADD U.S. Policy Update (from the NADD Bulletin Volume X1 Number 6)

Complete listing

Adverse Impact of the Medicare Acute Psychiatric Inpatient PPS For Patients With Co-Occurring Developmental Disabilities and Mental Illness

Diane Jacobstein, Ph.D., William O'Brien, MSW, Joan B. Beasley, Ph.D., 

Ann D. Hurley, Ph.D., Terrence McNelis, MS, Robert Fletcher, DSW, Julia Pearce

 

Following is a brief outline developed by members of the NADD US Public Policy Committee and submitted to the DHSS Office on Disability on behalf of individuals with dual diagnosis:

·Concerns are growing across the country about the adverse impact of the new Medicare reimbursement formula for acute psychiatric inpatient stays on patients with co-occurring intellectual/developmental disabilities and psychiatric problems. 

·The current Medicare rates for acute inpatient psychiatric admissions do not account for the unique needs of people with co-occurring intellectual/developmental disabilities and mental illness, as they were based on cost estimates for patients without mental illness alone.

·Individuals who have both developmental disabilities and mental illness commonly have significant medical problems that must be considered in order to clarify the diagnosis and provide effective treatment. They may not be able to communicate about their symptoms.  Their care requires more time, an interdisciplinary approach and a much wider array of subspecialties than is needed for individuals with mental illness alone (including speech-language pathology, neurology, occupational therapy, urology, orthopedics, physical therapy, gastroenterology, behavior specialists) because of the developmental disability, medical co-morbidity and complexity of both. 

·There is not enough time allotted by current guidelines (generally about 8 days), so patients are being discharged before their needs are addressed (which is estimated to take an average of about 13-16 days for this target group).

·Communities are seeing these patients stuck in emergency rooms, sometimes for a week or more, although open "network" beds are available in acute psychiatric units. 

·Inadequate time to complete the process leads to readmissions for the same problem.  Recidivism under the new rates is on the rise for this population and individuals may also remain impaired for longer time. 

·Evidence shows that recidivism is reduced by a comprehensive approach that requires more resources up front. This population is estimated to cost approximately 35-40% more to treat appropriately in acute stabilization admissions. Since the most common reason for admission is severe aggression, a far more intensive staffing pattern is also required, in order to increase safety and reduce the need for chemical restraint. (This would not have been observable when Medicare reviewed the costs related to diagnosis.)

·Many general psychiatric units have been reluctant to admit these patients because they need such specialized care.  There are concerns that reduced rates will exacerbate this reluctance and reduce access, further increasing the disparity in services for people with developmental disabilities relative to people without disabilities if the current payment structure is not modified. In addition, there are concerns that dedicated specialty units that have proven to be very effective for those with severe co-occurring developmental and psychiatric disorders will be at risk.

·Medicaid managed care providers in some states have paid differential rates for this population with good results.

·The recent establishment of rates for inpatient stays is not the problem.  The concern is that the current rates and associated service expectations do not match the needs of individuals with mental illness and intellectual/developmental disabilities. There are specialized inpatient programs that may serve as a way to better inform policy makers. One example is the inpatient unit at UMASS Medical Center that serves the entire New England region. This program and others found in the US should be identified as pilots to help establish more appropriate rates for the population.

 

References

Charlot, L and Beasley, JB (2005) Specialized Inpatient Mental Health Care for People with Intellectual Disabilities. The Mental Health Aspects of Developmental Disabilities 8 (3) 100-103.

Lohrer, S; Greene, E.; Browning, C; & Lesser, M.S. (2002). Dual Diagnosis: Examination of Service use and length of Stay during psychiatric hospitalization Journal of Developmental Disabilities 14 (2) 143-158.

Lunsky, Y; Bradley, E.; Durbin, J.; Koegl, C.; Carninus, M & Goerinz, P. (2003) Dual Diagnosis in Provincial Psychiatric Hospitals: A Population- Based Study.  Ontario Mental Health Foundation Publisher, Ontario, Canada

O'Brien, W. (2007) Changing Environments of Inpatient Psychiatric Care for Individuals with Intellectual Disabilities. The Mental Health Aspects of Developmental Disabilities 10 (6) 99-106.

Xenitidis, K; Gratsa, A; Bouras, N; Hammond, R; Ditchfield, H; Holt; G.; Martin, J.; & Brooks, D. (2004) Psychiatric Inpatient care for adults with intellectual disabilities: generic or specialist units? Journal of Intellectual Disabilities Research 48 (1) 11-18.

 

Your feedback is important to us. Please send your comments: Joan B. Beasley, Ph.D. at jbbeasley@rcn.com

 

Upcoming Conferences:

September

Ohio State 10th Annual MI/DD Conference ,  Mental Health Aspects –Treatment & Support (September 18 & September 19, 2012) Columbus, Ohio

October

NADD 29th Conference & Exhibit Show, (October 17 - 19, 2012)  Denver, Colorado

October 2013

NADD 30th Conference & Exhibit Show, Baltimore MD (October 23 - October 25, 2013) 

Complete Calendar

New Educational Products:

Intellectual Disability and Mental Health: A Training Manual in Dual Diagnosis
Sharon McGilvery, Ph.D. and Darlene Sweetland, Ph.D.

With the release of this book, Drs. McGilvery and Sweetland share decades of experience working with individuals diagnosed with an intellectual disability and co-occurring psychiatric disorders. Their well-practiced approach takes into account the extremely complex nature of working with dual-diagnosis.  The authors provide in-depth information about the diagnostic process, hands-on treatment considerations, and their experience training thousands of people to work passionately with these individuals.  An important contribution is their approach to addressing complicating factors in identifying appropriate psychiatric diagnoses, as well as the problem of the underreporting of psychiatric symptoms and disorders. Finally, those working in a variety of contexts with these individuals will benefit from the innovative approaches of looking at treatment and intervention strategies that can be immediately implemented. 264 pages      

Details: ST11-053B

 

A PRACTICAL GUIDE to Assessing Medical Issues Associated with Behavior/ Psychiatric Problems in Persons with Intellectual Disability – Revised in 2011
Ann R. Poindexter, M.D.

This book discusses medical/medication issues which may present as behavioral/ psychiatric problems in individuals with intellectual disability.  Three self-directed instructional courses and several illustrative case histories are included.  110 pages\

Details: DA05-021BR

 

Psychotherapy for Individuals with Intellectual Disability

Edited by:  Robert J. Fletcher, DSW, ACSW

This book provides the reader with insightful and useful ways to provide psychotherapy treatment for individuals who have intellectual disability (ID).  It brings together all three modalities (individual, couple, and group), and a variety of theoretical models and techniques are discussed.  The first section, Individual Therapy, offers a variety of approaches and techniques including dialectical behavioral therapy, positive psychology, mindfulness-based practice, and relaxation training. Also included in this section are chapters on specialty populations including victims of abuse, people who have Autism Spectrum Disorder, and people in mourning. The second section is a chapter on group therapy addressing trauma issues. The third section is on family and couple therapy. The fourth section covers chapters on research, ethics, and training.  The individual authors are respected authorities in the field of providing psychotherapy treatment for persons with ID and all have contributed to the professional literature. 

This book is a major contribution to the effort to make psychotherapy available to individuals who have ID and should serve to further stimulate interest in the provision of psychotherapy treatment for individuals who have ID co-occurring with significant mental health problems.

NADD # CT11-051B Details

 

 

Comprehensive Competence-Based Parenting Assessment for Parents with Learning Dificulties and Their Children

Maurice Feldman, PhD, Marjorie Aunos, PhD

This book presents an innovative, empirically-supported approach to assessing parenting capacity of parents with learning difficulties that can lead to more humane, fair and accurate child custody decisions.  The authors are leading researchers and practitioners in this field haing worked with hundred of these families.  Many professionals working with these families recognize that the current parenting capacity assessment approaches are based on outdatd and invalid assumptions and methods.  This book addresses the unique assessment needs of these families and includes detailed background information, rationales and methods.

NADD # DA10-050B Details

 

 

Working with People with Challeging Behaviors: A Guide for Maintaining Positive Relation

Nathan Ory

The material in this book introduces general practices and specific solutions to behavior problems that will work with people who display difficult and challenging behaviors regardless of who they are.  It is especially suitable for working with individuals who have developmental or intellectual disabilities coupled with a behavior disorder.  The methods also apply to the person with emotional or psychiatric disturbances, or another serious mental health problem.  Finally, they are helpful in providing support to elderly individuals who display challenging behavior.

NADD # ST10-049B Details

 

 

Human Needs and Intellectual Disabilities: Applications for Person Centered Planning, Dual Diagnosis, and Crisis Intervention

Steven Reiss, Ph.D.

Human Needs and Intellectual Disabilities identifies the 12 human needs most relevant to the lives of people with intellectual disabilities, autism and related developmental disabilities.  It includes detailed, practical suggestions for caregivers or parents interested in the happiness, quality of life, and self-determintion of their loved ones or consumers.  The book includes detailed, practical suggestions for reducing episodes of challenging behavior and psychiatric symptoms in people with a dual diagnosis (intellectual disabilities and mental illness).  It shows how to substitute the language of individuality (e.g., "friendly person") for the language of disability (e.g., "person with disability").  It also reduces the tendency of planners to confuse their own value system for that of the consumer.  The book includes scholarly reviews of dual diagnosis literature on mental illness, prevalence, and assessment.

NADD # DA10-048B Details

 

Positive Identity Development

Author: Karyn Harvey, PhD

Positive Identity Development is an exciting new approach to treatment for individuals with intellectual disabilities.  This book provides a new theoretical perspective on treatment along with a variety of innovative tools.  It rejects reducing adults with intellectual disabilities to a mere compilation of their behaviors and promotes the use of a positive, therapeutic approach to each unique individual. Psychologists, social workers and therapists should be able to use the tools presented in this book to directly enhance the effectiveness of the treatment they provide to adults with intellectual disabilities. This book promotes well-being on every level and explores a broad range of issues relevant to the life and mental health of adults with intellectual disabilities

Mbr Price: $34.95
Non-Mbr:  $39.95

NADD #CT09-047B Details

Down Syndrome: When to Worry about Mental Health and What to Do About It

Robin Friedlander, M.D. & Peter Johnson, Ph.D.

NADD # FI09-044B Details

Working with People who have Intellectual Disability and Behavioral Problems: A Self-Study Guide for Interdisciplinary Team Members

Ann R. Poindexter, M.D. & Paul D. Kolstoe, Ph.D.

NADD # ST09-045B Details

Multi-Media CDs of NADD 25th Annual Conference Presentations

Presentations recorded at NADD 25th Annual Conference are available as multi-media CDs.  These CDs contain the video and Power Point from conference presentations and are a great tool for training yourself and your staff.  To order, or for additional information, click here.

Community Networks of Specialized Care:  Building Community Capacity through Training and Education Lisa Holmes, Liz Froese, MSW, Rosanne Stein, LLB, BSc, Sandi Bricker

NADD Competency-Based Dual Diagnosis Certification Program Robert Fletcher, DSW, ACSW, FAAIDD; Donna McNelis, PhD; John McGonigle, PhD; Kathleen Olson, PhD; Jarrett Barnhill, MD

Autism Spectrum Disorders:  Separating the Data from the Myths Ann R. Poindexter, MD

Diagnostic Systems for Use with People with ID Luis Salvador-Carulla, MD, PhD, Robert J. Fletcher, DSW, ACSW, FAAIDD, Sally-Ann Cooper, MD

The price for the above multimedia is:  Member:  $49.95       Non-member:  $59.95

To order, or for additional information, click here.

 

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