NADD U.S. Policy Update (from the NADD Bulletin Volume XII Number 6)

Complete listing

School to Adult Transitions at Vanderbilt Program Description

 

Bruce E. Davis, Ph.D., LPC, SrLPE, BCBA, School to Adult Transitions at Vanderbilt

 

The transition from adolescence to adulthood is a difficult process under the best of circumstances.  Decisions have to be made and responsibilities have to be taken that may dramatically alter the course of a person's life.  The difficulty is magnified when the person experiencing the transition has multiple or severe disabilities.  The failure to properly plan for and address transition issues sets the stage for more intense difficulties later in life.

 

Educational services for persons with intellectual disabilities end between the ages of 18 and 22.  The Individuals with Disabilities Education Improvement Act (IDEA) 2004 requires transition planning for persons with intellectual disabilities, but many individuals leave school with no particular planning for the future.  When parents are unaware of their rights or the consequences of their decisions, they allow students to graduate early only to be relegated to an inactive and unstructured life at home.  This type of sedentary lifestyle fosters difficulties including those associated with behavioral health problems and mental illness.

 

In the School to Adult Transitions at Vanderbilt (SAT-V) program, 93% of persons aged 17 to 25 who enter services have significant problems with self-esteem and few psychological strengths.  When this type of discouragement is projected into the future, it is no wonder that people tend to develop difficult or unmanageable behavior.  One of the crucial needs for every adolescent with a disability is the belief that they can have a meaningful life.  Early adulthood is the precise time of life when many people begin to lose hope that many of their dreams will ever be fulfilled. 

 

At the basis of any service structure must be some process by which kids get the encouragement they need during this critical period.  Families are generally the source of this type of encouragement, but they frequently don't have the information they need to help their child be successful.  Unfortunately, they too are often discouraged about what their child can accomplish. In the SAT-V program we address this issue through consultation with the family.  By meeting with them on a regular basis, we can make them aware of the resources that exist for their child and help them set a course for the future. 

 

Another of the central issues faced by persons in transition is that after the school years they are left without any productive daily activity.  Over 70% of the individuals coming to SAT-V have difficulties with obtaining employment or even a structured day activity.  The question here should not be "whether" a person with a disability can have a meaningful day, but rather "how" a person can have a meaningful day.  Families frequently need assistance to know how their loved one can be successful in a work setting.  Competent professionals who know the employment landscape for people with disabilities are an essential component to identifying job opportunities and providing job training. 

 

Mental health services are also important for many persons in transition.  It is equally important that the services be appropriate to the person's need.  Most service systems still do not have enough mental health practitioners who are skilled in providing services to persons with intellectual disabilities.  The problem stems not just from failures of state agencies, but also the failures of universities to provide adequate training.  Psychiatrists, psychologists, social workers, and professional counselors often complete their courses of study with little or no exposure to the problems of people with intellectual disabilities.  SAT-V has begun to address the problem by offering internship opportunities for graduate students in psychology and special education.  This is a good start, but more must be done to ensure that coursework and experience in intellectual disabilities become more ubiquitous in university training.

 

Persons with disabilities experience gaps in services across the developmental spectrum, but those experienced by persons in post-secondary transition are some of the most glaring.  The movement from the educational system to other systems of support is anything but seamless.  As we set out to improve the service system we must ensure that transition needs are addressed in thoughtful and effective manner. 

 

The School to Adult Transitions at Vanderbilt program is a joint project between the Vanderbilt Kennedy Center and the Vanderbilt University Department of Psychiatry.  The program is funded by a grant from the John Merck Fund.

 

For further information, contact Dr. Davis at bruce.e.davis@vanderbilt.edu.

 

The "U.S. Public Policy Update" is an ongoing column in The NADD Bulletin.  We welcome your comments and submissions for this column.  To learn more or to contribute to this column you may contact Joan Beasley, Editor of the U.S. Public Policy Update at joan.beasley@unh.edu.

 

 

Upcoming Conferences:

September

Ohio State 10th Annual MI/DD Conference ,  Mental Health Aspects –Treatment & Support (September 18 & September 19, 2012) Columbus, Ohio

October

NADD 29th Conference & Exhibit Show, (October 17 - 19, 2012)  Denver, Colorado

October 2013

NADD 30th Conference & Exhibit Show, Baltimore MD (October 23 - October 25, 2013) 

Complete Calendar

New Educational Products:

Intellectual Disability and Mental Health: A Training Manual in Dual Diagnosis
Sharon McGilvery, Ph.D. and Darlene Sweetland, Ph.D.

With the release of this book, Drs. McGilvery and Sweetland share decades of experience working with individuals diagnosed with an intellectual disability and co-occurring psychiatric disorders. Their well-practiced approach takes into account the extremely complex nature of working with dual-diagnosis.  The authors provide in-depth information about the diagnostic process, hands-on treatment considerations, and their experience training thousands of people to work passionately with these individuals.  An important contribution is their approach to addressing complicating factors in identifying appropriate psychiatric diagnoses, as well as the problem of the underreporting of psychiatric symptoms and disorders. Finally, those working in a variety of contexts with these individuals will benefit from the innovative approaches of looking at treatment and intervention strategies that can be immediately implemented. 264 pages      

Details: ST11-053B

 

A PRACTICAL GUIDE to Assessing Medical Issues Associated with Behavior/ Psychiatric Problems in Persons with Intellectual Disability – Revised in 2011
Ann R. Poindexter, M.D.

This book discusses medical/medication issues which may present as behavioral/ psychiatric problems in individuals with intellectual disability.  Three self-directed instructional courses and several illustrative case histories are included.  110 pages\

Details: DA05-021BR

 

Psychotherapy for Individuals with Intellectual Disability

Edited by:  Robert J. Fletcher, DSW, ACSW

This book provides the reader with insightful and useful ways to provide psychotherapy treatment for individuals who have intellectual disability (ID).  It brings together all three modalities (individual, couple, and group), and a variety of theoretical models and techniques are discussed.  The first section, Individual Therapy, offers a variety of approaches and techniques including dialectical behavioral therapy, positive psychology, mindfulness-based practice, and relaxation training. Also included in this section are chapters on specialty populations including victims of abuse, people who have Autism Spectrum Disorder, and people in mourning. The second section is a chapter on group therapy addressing trauma issues. The third section is on family and couple therapy. The fourth section covers chapters on research, ethics, and training.  The individual authors are respected authorities in the field of providing psychotherapy treatment for persons with ID and all have contributed to the professional literature. 

This book is a major contribution to the effort to make psychotherapy available to individuals who have ID and should serve to further stimulate interest in the provision of psychotherapy treatment for individuals who have ID co-occurring with significant mental health problems.

NADD # CT11-051B Details

 

 

Comprehensive Competence-Based Parenting Assessment for Parents with Learning Dificulties and Their Children

Maurice Feldman, PhD, Marjorie Aunos, PhD

This book presents an innovative, empirically-supported approach to assessing parenting capacity of parents with learning difficulties that can lead to more humane, fair and accurate child custody decisions.  The authors are leading researchers and practitioners in this field haing worked with hundred of these families.  Many professionals working with these families recognize that the current parenting capacity assessment approaches are based on outdatd and invalid assumptions and methods.  This book addresses the unique assessment needs of these families and includes detailed background information, rationales and methods.

NADD # DA10-050B Details

 

 

Working with People with Challeging Behaviors: A Guide for Maintaining Positive Relation

Nathan Ory

The material in this book introduces general practices and specific solutions to behavior problems that will work with people who display difficult and challenging behaviors regardless of who they are.  It is especially suitable for working with individuals who have developmental or intellectual disabilities coupled with a behavior disorder.  The methods also apply to the person with emotional or psychiatric disturbances, or another serious mental health problem.  Finally, they are helpful in providing support to elderly individuals who display challenging behavior.

NADD # ST10-049B Details

 

 

Human Needs and Intellectual Disabilities: Applications for Person Centered Planning, Dual Diagnosis, and Crisis Intervention

Steven Reiss, Ph.D.

Human Needs and Intellectual Disabilities identifies the 12 human needs most relevant to the lives of people with intellectual disabilities, autism and related developmental disabilities.  It includes detailed, practical suggestions for caregivers or parents interested in the happiness, quality of life, and self-determintion of their loved ones or consumers.  The book includes detailed, practical suggestions for reducing episodes of challenging behavior and psychiatric symptoms in people with a dual diagnosis (intellectual disabilities and mental illness).  It shows how to substitute the language of individuality (e.g., "friendly person") for the language of disability (e.g., "person with disability").  It also reduces the tendency of planners to confuse their own value system for that of the consumer.  The book includes scholarly reviews of dual diagnosis literature on mental illness, prevalence, and assessment.

NADD # DA10-048B Details

 

Positive Identity Development

Author: Karyn Harvey, PhD

Positive Identity Development is an exciting new approach to treatment for individuals with intellectual disabilities.  This book provides a new theoretical perspective on treatment along with a variety of innovative tools.  It rejects reducing adults with intellectual disabilities to a mere compilation of their behaviors and promotes the use of a positive, therapeutic approach to each unique individual. Psychologists, social workers and therapists should be able to use the tools presented in this book to directly enhance the effectiveness of the treatment they provide to adults with intellectual disabilities. This book promotes well-being on every level and explores a broad range of issues relevant to the life and mental health of adults with intellectual disabilities

Mbr Price: $34.95
Non-Mbr:  $39.95

NADD #CT09-047B Details

Down Syndrome: When to Worry about Mental Health and What to Do About It

Robin Friedlander, M.D. & Peter Johnson, Ph.D.

NADD # FI09-044B Details

Working with People who have Intellectual Disability and Behavioral Problems: A Self-Study Guide for Interdisciplinary Team Members

Ann R. Poindexter, M.D. & Paul D. Kolstoe, Ph.D.

NADD # ST09-045B Details

Multi-Media CDs of NADD 25th Annual Conference Presentations

Presentations recorded at NADD 25th Annual Conference are available as multi-media CDs.  These CDs contain the video and Power Point from conference presentations and are a great tool for training yourself and your staff.  To order, or for additional information, click here.

Community Networks of Specialized Care:  Building Community Capacity through Training and Education Lisa Holmes, Liz Froese, MSW, Rosanne Stein, LLB, BSc, Sandi Bricker

NADD Competency-Based Dual Diagnosis Certification Program Robert Fletcher, DSW, ACSW, FAAIDD; Donna McNelis, PhD; John McGonigle, PhD; Kathleen Olson, PhD; Jarrett Barnhill, MD

Autism Spectrum Disorders:  Separating the Data from the Myths Ann R. Poindexter, MD

Diagnostic Systems for Use with People with ID Luis Salvador-Carulla, MD, PhD, Robert J. Fletcher, DSW, ACSW, FAAIDD, Sally-Ann Cooper, MD

The price for the above multimedia is:  Member:  $49.95       Non-member:  $59.95

To order, or for additional information, click here.

 

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