NADD U.S. Policy Update (from the NADD Bulletin Volume VII Number 2)

Complete listing

Mental Health Parity: Will This Be the Year?

Anna L. Zendell, MSW School of Social Welfare, University at Albany, State University of New York
NADD U.S. Public Policy Committee

Access to comprehensive mental health services has long been a struggle for people with dual diagnoses. Health insurers typically provide less coverage (visit caps, higher co-payments, and higher deductibles) for mental health and substance abuse than for general medical care. This inequity can lead to adverse outcomes. Many people with co-occurring developmental disability and mental disorder, particularly children, are covered under their parents' insurance plans and regularly face this disparity.

The federal government and most states have passed laws to restrict these practices. The Mental Health Parity Act (MHPA) of 1996 prohibits insurers from placing lifetime and annual dollar limits on mental health benefits. By October 2003, 46 states had enacted their own parity legislation (NCSL, 2003), though most require only limited parity. Not all states cover substance abuse and many do not cover the full spectrum of psychiatric diagnoses. Arkansas, Maryland, New Hampshire, New Jersey, and New Mexico offer comprehensive parity for most mental illness (NCSL, 2003).

The MHPA requires that dollar limits for both medical and mental health coverage be identical when both types are offered as part of a group insurance plan. It does not apply to plans with fewer than 51 workers, or to health insurance coverage obtained through the state, welfare assistance, or on the individual market. It does not affect companies that do not offer mental health benefits. The MHPA contains loopholes that have spurred congressional leaders and advocates to seek more comprehensive parity legislation. For example, the General Accounting Office found that plans cut costs by imposing stricter limits on medications and outpatient mental health care (Kjorstad, 2003). The law also did not provide a definition of mental illnesses to be covered, allowing insurers to defray costs by limiting types of psychiatric disorders covered.

Many advocates are frustrated by the lack of improvement in mental health care access and utilization. A growing body of evidence suggests that comprehensive parity is affordable and would improve the lives of people with psychiatric disorders. The U.S. Surgeon General (1999) reports that, in states requiring parity, cost increases were nearly imperceptible as long as the care is managed. An actuarial analysis by the National Advisory Mental Health Council estimates that full parity would increase premiums by only 1.4% (Feldman, Bachman & Bayer, 2002).

The Senator Paul Wellstone Mental Health Equitable Treatment Act (MHETA) of 2003, presently under consideration in both the House and Senate, is intended to sharply reduce insurance disparity. Originally introduced in 2001, the MHETA would prohibit group plans from imposing treatment limitations or financial requirements on mental health benefits unless the same requirements were placed on general medical benefits. It would require coverage for all categories of mental disorders under the DSM-IV and close loopholes on time limitations for coverage, deductibles and co-payments. Employers of fifty or fewer people would still be exempted. Standard managed care tools such as prior authorization, preferred within-network coverage, and utilization reviews would be permitted to maintain affordability for employers and accountability among providers.

The MHETA would greatly reduce insurance inequity, sharply reducing fears for many individuals and families of exceeding insurance caps before the person stabilizes or receiving less effective intervention due to insurance. This landmark legislation has the support of President Bush, over two-thirds of the Senate, half of the House, and advocates from most disability groups (Kjorstad, 2003). While the MHETA does not cover Medicaid or Medicare, it may be a stepping-stone to passage of parity legislation for these two programs over time.

Nearly 300 national organizations support this legislation, including The NADD. Despite this broad-based support, business and insurance lobbies have consistently blocked passage, citing fears of dramatic cost increases. While some factions appear willing to compromise, many compromises would involve covering only the most "severe" mental health disorders, a move that would limit diagnoses covered for persons with co-occurring disorders.

This year will be crucial for the MHETA. Senators Domenici (R-NM) and Kennedy (D-MA) are planning to move the MHETA to the full senate for a vote early this spring. Advocates must follow the bill through both houses of Congress to assure that it is not weakened or set aside. Advocacy organizations, including The Bazelon Center, National Alliance for the Mentally Ill, The ARC of the US, and National Mental Health Association, provide action alerts informing people how to influence important legislation, such as writing or telephoning congressional representatives. Additionally, the Parity Hotline (1-866-PARITY4) provides direct access to the Capitol switchboard and connects directly to senators and representatives.

The importance of contacting local congressional representatives cannot be emphasized enough. Passage of the MHETA would help dispel the societal norm that people with mental disorders, particularly those with co-occurring developmental disabilities, are "less deserving" of treatment than those with physical illnesses and would dramatically improve treatment options for persons with dual diagnoses.

 

References:

Feldman, S; Bachman, J. & Bayer, J. (2002). Mental health parity: a review of research and a bibliography. Administration and Policy in Mental Health, 29(3), 215-228.

Kjorstad, M.C. (2003). The current and future state of mental health insurance parity legislation. Psychiatric Rehabilitation Journal, 27(1), 24-42.

National Conference of State Legislators. (2003). Mental health parity. State Health Lawmakers' Digest 1(2). Retrieved from http://www.ncls.org/programs/health/forums/shld/23.htm.

US Department of Health and Human Services (1999). Mental health: a report of the surgeon general. Rockville, MD: National Institute of Mental Health.

Upcoming Conferences:

September

Ohio State 10th Annual MI/DD Conference ,  Mental Health Aspects –Treatment & Support (September 18 & September 19, 2012) Columbus, Ohio

October

NADD 29th Conference & Exhibit Show, (October 17 - 19, 2012)  Denver, Colorado

October 2013

NADD 30th Conference & Exhibit Show, Baltimore MD (October 23 - October 25, 2013) 

Complete Calendar

New Educational Products:

Intellectual Disability and Mental Health: A Training Manual in Dual Diagnosis
Sharon McGilvery, Ph.D. and Darlene Sweetland, Ph.D.

With the release of this book, Drs. McGilvery and Sweetland share decades of experience working with individuals diagnosed with an intellectual disability and co-occurring psychiatric disorders. Their well-practiced approach takes into account the extremely complex nature of working with dual-diagnosis.  The authors provide in-depth information about the diagnostic process, hands-on treatment considerations, and their experience training thousands of people to work passionately with these individuals.  An important contribution is their approach to addressing complicating factors in identifying appropriate psychiatric diagnoses, as well as the problem of the underreporting of psychiatric symptoms and disorders. Finally, those working in a variety of contexts with these individuals will benefit from the innovative approaches of looking at treatment and intervention strategies that can be immediately implemented. 264 pages      

Details: ST11-053B

 

A PRACTICAL GUIDE to Assessing Medical Issues Associated with Behavior/ Psychiatric Problems in Persons with Intellectual Disability – Revised in 2011
Ann R. Poindexter, M.D.

This book discusses medical/medication issues which may present as behavioral/ psychiatric problems in individuals with intellectual disability.  Three self-directed instructional courses and several illustrative case histories are included.  110 pages\

Details: DA05-021BR

 

Psychotherapy for Individuals with Intellectual Disability

Edited by:  Robert J. Fletcher, DSW, ACSW

This book provides the reader with insightful and useful ways to provide psychotherapy treatment for individuals who have intellectual disability (ID).  It brings together all three modalities (individual, couple, and group), and a variety of theoretical models and techniques are discussed.  The first section, Individual Therapy, offers a variety of approaches and techniques including dialectical behavioral therapy, positive psychology, mindfulness-based practice, and relaxation training. Also included in this section are chapters on specialty populations including victims of abuse, people who have Autism Spectrum Disorder, and people in mourning. The second section is a chapter on group therapy addressing trauma issues. The third section is on family and couple therapy. The fourth section covers chapters on research, ethics, and training.  The individual authors are respected authorities in the field of providing psychotherapy treatment for persons with ID and all have contributed to the professional literature. 

This book is a major contribution to the effort to make psychotherapy available to individuals who have ID and should serve to further stimulate interest in the provision of psychotherapy treatment for individuals who have ID co-occurring with significant mental health problems.

NADD # CT11-051B Details

 

 

Comprehensive Competence-Based Parenting Assessment for Parents with Learning Dificulties and Their Children

Maurice Feldman, PhD, Marjorie Aunos, PhD

This book presents an innovative, empirically-supported approach to assessing parenting capacity of parents with learning difficulties that can lead to more humane, fair and accurate child custody decisions.  The authors are leading researchers and practitioners in this field haing worked with hundred of these families.  Many professionals working with these families recognize that the current parenting capacity assessment approaches are based on outdatd and invalid assumptions and methods.  This book addresses the unique assessment needs of these families and includes detailed background information, rationales and methods.

NADD # DA10-050B Details

 

 

Working with People with Challeging Behaviors: A Guide for Maintaining Positive Relation

Nathan Ory

The material in this book introduces general practices and specific solutions to behavior problems that will work with people who display difficult and challenging behaviors regardless of who they are.  It is especially suitable for working with individuals who have developmental or intellectual disabilities coupled with a behavior disorder.  The methods also apply to the person with emotional or psychiatric disturbances, or another serious mental health problem.  Finally, they are helpful in providing support to elderly individuals who display challenging behavior.

NADD # ST10-049B Details

 

 

Human Needs and Intellectual Disabilities: Applications for Person Centered Planning, Dual Diagnosis, and Crisis Intervention

Steven Reiss, Ph.D.

Human Needs and Intellectual Disabilities identifies the 12 human needs most relevant to the lives of people with intellectual disabilities, autism and related developmental disabilities.  It includes detailed, practical suggestions for caregivers or parents interested in the happiness, quality of life, and self-determintion of their loved ones or consumers.  The book includes detailed, practical suggestions for reducing episodes of challenging behavior and psychiatric symptoms in people with a dual diagnosis (intellectual disabilities and mental illness).  It shows how to substitute the language of individuality (e.g., "friendly person") for the language of disability (e.g., "person with disability").  It also reduces the tendency of planners to confuse their own value system for that of the consumer.  The book includes scholarly reviews of dual diagnosis literature on mental illness, prevalence, and assessment.

NADD # DA10-048B Details

 

Positive Identity Development

Author: Karyn Harvey, PhD

Positive Identity Development is an exciting new approach to treatment for individuals with intellectual disabilities.  This book provides a new theoretical perspective on treatment along with a variety of innovative tools.  It rejects reducing adults with intellectual disabilities to a mere compilation of their behaviors and promotes the use of a positive, therapeutic approach to each unique individual. Psychologists, social workers and therapists should be able to use the tools presented in this book to directly enhance the effectiveness of the treatment they provide to adults with intellectual disabilities. This book promotes well-being on every level and explores a broad range of issues relevant to the life and mental health of adults with intellectual disabilities

Mbr Price: $34.95
Non-Mbr:  $39.95

NADD #CT09-047B Details

Down Syndrome: When to Worry about Mental Health and What to Do About It

Robin Friedlander, M.D. & Peter Johnson, Ph.D.

NADD # FI09-044B Details

Working with People who have Intellectual Disability and Behavioral Problems: A Self-Study Guide for Interdisciplinary Team Members

Ann R. Poindexter, M.D. & Paul D. Kolstoe, Ph.D.

NADD # ST09-045B Details

Multi-Media CDs of NADD 25th Annual Conference Presentations

Presentations recorded at NADD 25th Annual Conference are available as multi-media CDs.  These CDs contain the video and Power Point from conference presentations and are a great tool for training yourself and your staff.  To order, or for additional information, click here.

Community Networks of Specialized Care:  Building Community Capacity through Training and Education Lisa Holmes, Liz Froese, MSW, Rosanne Stein, LLB, BSc, Sandi Bricker

NADD Competency-Based Dual Diagnosis Certification Program Robert Fletcher, DSW, ACSW, FAAIDD; Donna McNelis, PhD; John McGonigle, PhD; Kathleen Olson, PhD; Jarrett Barnhill, MD

Autism Spectrum Disorders:  Separating the Data from the Myths Ann R. Poindexter, MD

Diagnostic Systems for Use with People with ID Luis Salvador-Carulla, MD, PhD, Robert J. Fletcher, DSW, ACSW, FAAIDD, Sally-Ann Cooper, MD

The price for the above multimedia is:  Member:  $49.95       Non-member:  $59.95

To order, or for additional information, click here.

 

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